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Dive into our resources that may help to support your treatment and overall wellbeing!
Treatment education
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Disease and condition
Family and friends guide to Fabry
Discover how family and friends can help support people living with Fabry disease.
What is Gaucher?
Find out about Gaucher disease and what it means for you.
What is Fabry?
Find out about Fabry disease and what it means for you.
Parents' and carers' guide to Gaucher
Discover how you can help support people living with Gaucher disease.
Living with Fabry
Learn tips to try to help manage Fabry symptoms and support a healthy lifestyle.
Understanding Fabry disease factsheet
A booklet produced by Fabry Australia, explaining Fabry disease for a newly diagnosed individual and their family.
Personal stories - Fabry disease
Delve into personal narratives and stories shared by individuals who have firsthand experience with Fabry disease.
RARE Portal - Rare Voices Australia
The Rare Awareness Rare Education (RARE) Portal contains current, reliable and straightforward information and resources for all rare disease stakeholders customised for the Australian context. The RARE Helpline aims to provide timely access to information and answer key questions people living with a rare and complex disease often face.
Health and wellbeing
Chronic conditions at work
Feel more confident navigating the workplace with your chronic condition.
Communicating with doctors
What you can say and do to get the most out of your healthcare appointments.
Navigating healthcare
Understand how Australia's healthcare system can work for people with a chronic condition.
Talking about your condition
Talking to your friends and family about your condition? Here's what you should know.
Jargon Journal
A dictionary of simple definitions for healthcare and therapy terms, designed to help you navigate the healthcare landscape.