Address book

Address Book
Disease state
State
Our partners
Looking to connect with others who are or have been on a similar journey? Reach out to any of our partners below who will point you to additional helpful resources.
Rare Voices Australia
Rare Voices Australia

Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. Established in 2012, RVA works with all key stakeholders to drive the best outcomes for Australians living with a rare disease.

Fabry Australia
Fabry Australia

A patient-run non-profit organisation founded in 1994 that supports individuals with Fabry across Australia.

Gaucher Association Australia & New Zealand
Gaucher Association Australia & New Zealand

A non-profit association with the mission to Improve the health and wellbeing of Australian and New Zealander Gaucher patients through community building, education, advocacy, and support of research.

Genetic Alliance Australia
Genetic Alliance Australia

A tax-deductible registered charity, formed in 1988 to provide support and information for individuals and families affected by a genetic condition.

Transplant Australia
Transplant Australia

Transplant Australia is a national charity dedicated to supporting transplant recipients, living donors, donor families, and those awaiting transplants through advocacy, education, and programs that promote active lifestyles and raise awareness about organ and tissue donation. 

Arrow
Arrow

At Arrow, our target is clear. We aim to provide personalised support, healthcare training and research funding to help every Australian enduring tough but lifesaving bone marrow and stem cell transplants.

HAE Australasia
HAE Australasia

A not-for-profit patient advocacy organisation dedicated to serving persons with hereditary angioedema, in Australia and New Zealand.